My Vision

Hello and Welcome to My Journey with Pemphigus Vulgaris that first showed itself in February 2011.

I have created this website to share my Autoimmune Disease with Family, Friends, Colleagues, the Local Community and the World

And... for all of you who have PV,  I hope that you will learn something from my experience so that you experience comfort and a normal life... as that is what I will be doing :)

I am The CEO for many businesses I have had the pleasure of being part of.  I am a 45 year old male living in California, U.S.A. with my beautiful family.

MY VISION: 
    To See a Cure for Pemphigus Vulgaris in my Lifetime!

Towards this Vision, I will do what I must to raise awareness, bring new solutions to the table, be a support for others with Pemphigus Vulgaris and fund research to find a cure.   I am currently in the process of setting up a formal structure that will make my vision a reality.    Want to help?  Stay tuned and let's do it together!


84 comments:

  1. THANKS, Mr. CEO for a very positive GOAL! I am with you ... A CURE will be FOUND! Just continue to BELIEVE. DR. M

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  2. I to have pv I have had it since 2010 the Doctors did't know what it was till Sept 28,2011 I have gone through a long journey. it started in my nouth then my head blisters on my face,back,chest,feet,knees and butt. they put me on 80mgs pred. rhytuxin iv shot me up full of steriods. it is now starting to go away someday i hope that there will be a cure. thank you

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    Replies
    1. It has been a long time since my treatment of rhytuxin iv i went to the doctors today he said that it is looking good he has taken totally off prednisone I still can sleep all day but thank God and the Doctors that found this in time it was a close call ( the doctor said that it was the worst case he has ever had ) so if anyone would ask me the best thing for treating Pemphigus i would tell them to go with (RHYTUXIN) it will realy work i only had 3 treatments of it plus prednisone someday i hope that there will be a cure. thank you

      Delete
    2. Hi,

      Could you please let me know more about Rhytuxin.Side effects and how long you are out of this disease.We just came to know about this medicine ,would really need to take advice from you.Could you please mail me back sushmita125@gmail.com along with all details.

      Many thanks,
      Regards,

      Delete
    3. Some side effects for its use are available on http://www.webmd.com/drugs/2/drug-5206/rituxan-iv/details.
      I'm curious if it had any ill effects vis-a-vis diabetes, as it attacks B cells which regulate sugar in the pancreas.

      Delete
  3. Great to see that others are active in this! I was diagnosed in 2010 so I have been dealing with PV for a while now and am thankfully am no longer taking prednisone. For those of you who have taken it, you understand. It would be great to see more work done on PV and other autoimmune disorders. I am of the opinion that a breakthrough technology will be needed to deal with resetting or reprogramming the immune system to stop attacking your own body. Of course this kind of technology would have applications in all autoimmune related problems including organ transplantation and possibly vaccination. And my guess technologies like this will develop alongside methods for manually reprogramming DNA. Such small scale and system wide manipulation of our bodies will probably be a big deal as it will probably also show a way to stop out of control mutations (cancer) as well.

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  4. glad find out this site. I just learned that my brother was diagnosed few month ago. I am flying over to see him in the next few days, but I don't know how to deal with this yet. I need more information, but don't know where to look. How to find out the best doctor? How about the diet? Please help..

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  5. My husband's dr., a dermatologist, says diet would not help with PV. I wonder....has anyone else tried gluten-free, or anything else?

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    Replies
    1. Diet DOES help. I learned of the doctor who saw that reducing Thiols and Tanins (no onions or garlic, no chocolate or tea) made a huge difference in her patients. I extended it to NO Thiols or Tanins - insanely extreme -(no fruits except watermelon, only a few vegies and no herbs or spices) - BUT, my doctor said I was doing better than her patients on predinosone. UNTIL I had a major stressor that lasted 7 weeks. Now I'm researching the connection to auto-immunes and leaky-gut syndrome. Have started probiotics and high Vit. C and intend to do more - (still limiting all thiols and tanins). Will put this on other page of the blog to see if
      folks would be interested in a more frequent group discussion. Group Support of supports greater and faster healing. Best wishes ~ ladyiehawk@aol.com

      Delete
    2. Can you post what you typically eat for breakfast, lunch and dinner? I am currently on pred and cellcept but I am trying to control it with diet as I get sick all of the time on cellcept due to immune supression

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    3. Can you post what you typically eat for breakfast, lunch and dinner? I am currently on pred and cellcept but I am trying to control it with diet as I get sick all of the time on cellcept due to immune supression

      Delete
  6. Hello mr.Ceo!!!!
    great idea of you open this blog
    My wife was diagnosed on november 2009. And followed a treatment very alike at yours. She managed herself trouhg hard times to overcome PV. And then this year the desease striked back

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    Replies
    1. hi,why dont you go for rituximab infusion,it helped me and iam off steriods for 4 yrs now..consult ur doc, who know's his might help ur wife..best of luck..

      Delete
    2. Hi,

      Could you please let me know more about Rituximab.We just came to know about this medicine.Need your advice.Please mail me at sushmita125@gmail.com

      Delete
  7. Thank you for this site Mr. CEO, It is extremely informative. A very dear friend of mine, who live in Portland, OR was recently diagnosed. He is in one of the hospitals there and has been struggling for months now. Because of him having NO INSURANCE, he wasn't getting nor searching out proper treatment. It wasn't until he was minutes away from death because of blood loss from these blisters and rushed to an Emergency Room, that he is now finally getting the proper care. This Portland Hospital is apparently a research Hospital and is treating him for free. It appears he has a long road ahead of him, and at this time is unable to walk, or talk because of the severity of the blisters on his legs and in his mouth. After reading your site, I now have a new outlook on this horrible disease. Thank you for sharing you story and I look forward to seeing new updates on treatments.

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  8. I love the blog and it is very helpful. My husband has PV and he is not able to get life insurance. Did Anyone go through something like this? Please help.

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    Replies
    1. Hi I have diagnosed with PV in September 2016.but mediclaim policy dyned for expenses for treatment

      Delete
  9. hey...my name is mehtab iam from bombay india...i was diagnosed for pv in feb2005 initially this seemed like a normal skin disorder but as the time passed i got to the seriousness of this disease,i was on heavy dose of steroids my condition went from bad to worse,in 2008 i came to know about rituximab infusion,i told my doc that i want to go for it irrespective of the outcome,i took rituximab in may2008 4 infusions 1 weekly for a month and amazingly i was off steriods,iwas on azaron 50 mg for a year,exactly after a year pv symtoms started showing again,,again i went for rituximab infusion and thank allah iam absolutely fine till date though iam on azaron 50 mg curretly but its better than steroids.if u need any assistance on this u can contact me on mehtab76@gmail.com...best of luck guys...

    ReplyDelete
    Replies
    1. Hi Mehthab,



      Very happy to know that you are fine after the treatment.

      i am writhing this for my mother , she is suffering with PV for last 4-5 years which came in her mouth which followed in her skin.Now the condition is very bad.She is taking the steroids for past 3-4 years.

      Can you please tell me about rituximab infusion.and the place where we wiil get the treatment.

      I am from Kerala, please help me.

      Thank you,

      Aswin

      Ph-0-7204451216

      Delete
    2. Hi I am aslo suffering from p.v since 2014. And took dcp therapy for 7 months and came down to steriods for 2.5 years still I have relapse .

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    3. Mehtabji cud unplz share if thr were any side effects of rituximab imm when u took it?
      Also who is ur doctor in mum?
      We hv been told to tk this treatment after 8 months of zempred tapered doses as it relapsed. So doing research.
      Thnk u

      Delete
    4. Hi mehtab plz send me ur number

      Delete
  10. Hi Mr CEO

    Just seeing how you are going with everything...

    ReplyDelete
  11. Thank you Mr. CEO for your site.
    I am from India.My husaband has PV since 2009. Initially he was been mis treated for a year.It started in his mouth then head.He is on steriods for more than 3 years now.All the tests results are normal still not getting rid of it.He is really very tired of medicines.Please help.....My email ID: reshmaps9@yahoo.co.in
    ****Please help.

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  12. Hi All , I have been attacked by this from last 3-4 months . Again the underline story is same i.e"How it started". here I will be deviating from what medical science is offering and what almighty can offer . Our body is perfect machine of the universe . It would do the best to protect anything that do destruction so it is the best medicine to it's own diseases. Do following thing for 2 weeks and reply :

    Take rest at home for 2 weeks , do not go for hard material to eat.
    Avoid soar food material , milk at night . curd , orange , bannana .
    use cotton bed sheet , do not go for shave , do not apply soap and any cleasning material to the body parts . Avoid toching the bister , apply coconut oil with cotton . Make sure person infected with this disease do not move out of the home . Avoid third person entry into the room of patient.
    Do not watch mirror . Chant GOD name , the human body is the GOD gift let GOD deal with it. Also please do not get irritated try to gain +ve energy . Use this time to chant GOD .

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  13. thanks for this vision in life...im 25 years old and live in Texas. I have been dealing with pv for now 7 months...I'm taking 40mg pred n 2tablets mycophenolate of 500mg...I think my doctor's plan is to take off pred n continue with mycophenolate but im not sure; I will know in my next appointment jeje...Im getting better thanks god, but im still looking for better alternatives. right now, I have some blisters on my face, head, back n chest. many people talk about rituximab with less side effects...I hope some people can share their experiences with the rituximab infusions and how they are doing.is it expensive? how was ur experience with this medicine?....I thank u for having this website with a lot of helpful info n real life testimonials.
    GREETING...THANK you..:)

    ReplyDelete
  14. hello,
    I am from India,i am also facing this disease from one last month.for this disease treatment is going on.i want to know the diet plan,i really don't understand what to eat??doctor told us not eat non-veg food i follow that.
    waiting for your reply.
    Thanks......

    ReplyDelete
  15. hi,
    i am from india, i was identified(PV) in 2009, still i am taking steroid and immuno suppressive inj. dr advised me to go for rituximab. please advise me about the rituximab success rate and side effects. some sites told to have 3 apple a day will have the better result.

    Thanks....

    ReplyDelete

  16. I've had pv for a month now, it started in my mouth. Before I knew it I could hardly eat an lost 40lbs. I went to the emergency room and was tested for everything. The doctor thought I had betchets maybe but thought it might just be oral thrush like a fungal infection. Then came the body blisters then I found out it was PV. The dermatologist put me on pred 80mg for two weeks then 70 for two week and so on until I get to 40mg then I'm supposed to be put on a none steroid medication, with probably a small dose pred. My blood pressure is really high to, I need to find a doctor that has treated PV before. When I was in the hospital they gave me 50mg of pred and my mouth And blisters dried up. Then I go home and I get a call saying I have PV start taking 80mg. That just seems like a lot from what I've been reading. I went from not eating to eating to much and I'm taking vitamin d,c and calcium and for some reason I'm addicted to milk now. It like my whole life changed in a month

    ReplyDelete
  17. I know a doctor who gives herbal medicine for pemphigus Vulgaris, his name is Dr.Waseem Quereshi, he is from Hyderabad, India.
    contact no : 9000222404; 7207476966

    ReplyDelete
  18. Mr. CEO. There is no post for you for a long time. Hope you are doing fine.

    ReplyDelete
  19. My father was on defza 30 and azoran for the past 2 yrs only on the basis of visual analysis of blisters..he simultaneously went for an homeopathic treatment..on one side the allopathy seemed to suppress the homeopathy was exacerbating the lesions and hence we stopped the homeopathy treatment.. now he had mild blisters in mouth..he recently went for biopsy nd was confirmed for pv..doc suggested an iv treatment most prob rituximab..please mail me your views on this at akshayrohilla74gmail.com

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  20. I started having symptoms in Oct 1994, but was not diagnosed until the Spring of 1995. I have gone through large doses of prednisone and immuran. Mine too, started in my mouth. I spent months wrapped in curlex. Currently, I am on doxycyline and immuran. while I don't have many breakouts now, it still is not in remission.

    ReplyDelete
  21. my son was deducted Phemphegious in Jan15 inUS. He came India with daily doze of 40 mg pred.
    on2nd April15. Under a Naturepathic doctor he could avoid Pred. completely in 15 days.he is not taking any medicine and there is no freash blisters since then
    Thanks to water fasting and juice therapy

    ReplyDelete
    Replies
    1. Hi there.its nice to hear.my mother suffering from pv for 1 year.now her. Full body with blisters. Can u pls help me save my mother. Kindly give me the contact details of ur doctor. I am from Tamilnadu (India)

      Delete
    2. Hi there.its nice to hear.my mother suffering from pv for 1 year.now her. Full body with blisters. Can u pls help me save my mother. Kindly give me the contact details of ur doctor. I am from Tamilnadu (India)

      Delete
    3. Hi, can you pls suggest the doctor, this will be life saving for me.

      Delete
    4. Can u please tell me from where u took treatment. My mother is suffering heavily. Kindly give the contact details. My mail id. marinekarthikeyan@gmail.com. thank-you

      Delete
    5. Hello sir,
      Nice to hear and know through your post Dated May 10, 2015 at 10:01 PM..How is your son now. Can I get the Neuropathic doctors contact number...Please provide me..
      Thank you..

      Delete
  22. That's very nice to hear! One f my friend is suffering from this disease! Sir, cold you please tell which naturopathic Doctor you went ? So I could also recommend it to my friend.. It would be really helpful! Thanks in advance

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  23. Hello,

    I am new to PV. I am 29 year old male. I live in California. I started with my head then my mouth. Then came the skin bumps. And they keep coming. I am currently on steroids. They helped my mouth so far. I am thinking about rituximab infusion. Can anyone give me your opinion

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    Replies
    1. I've had PV since 2005 and had been on Prednisone up until 2012 when my doctor at UCLA suggested Rituxan treatments. I did 4 rounds in a month and I was put on remission for almost 4 years without any breakouts. Just a week ago I had a flare up and am now getting ready to start another round of Rituxan. I b personally took Prednisone for too many years and showed too little improvement with too many long term side effects to worry about. I would definitely recommend Rituxan!

      Delete
    2. I've had PV since 2005 and had been on Prednisone up until 2012 when my doctor at UCLA suggested Rituxan treatments. I did 4 rounds in a month and I was put on remission for almost 4 years without any breakouts. Just a week ago I had a flare up and am now getting ready to start another round of Rituxan. I b personally took Prednisone for too many years and showed too little improvement with too many long term side effects to worry about. I would definitely recommend Rituxan!

      Delete
  24. Hi friends. Last month i have posted a commen. Regarding my mother's problem.now i found a good doctor and now my mother is almost 80% cured in 1 month.her condition was very bad last month.her 60% body had full blisters and its like a 2nd degree burn in her whole body.for past 16 months we r taking alopathy medicine. But no use.the propogation of disease took over the medicine. At 16th month we went to APOLLO chennai too and spend 1.2 laks for 8 days.but no use.she was not able to travel by any means to go further check ups and steroids. We lost our hope.at last we went to KOTTAKAL ARYA VYDYA SALA In thanjavur branch(TAMILNADU, INDIA).doctor said she is in advanced state.but if u follow my medicine properly u will get improved in a month.Doctor fee is 100₹ and medicine is 700₹.every 10 days i need to go to the status of her conditions. Believe me within 10 days new bubble stopped and in another 10 days her bliste. Wound and all start cured.now almost 40 days of his treatment 80% cured.my mother is Diabetic too.doctor said if for normal person taking 10 days to cure,Diabetic patient will require minimum 50 days.we took allopathy medicine to control her sugar level and we brought below 100.thats what we did and rest all done by doctor. That KOTTAKAL ARYA VYDYA SALAI is originated from kerala and they have branches all over india in all major cities. So just go to internet and type the hospital name and i am sure u will get cured.thanks for this blog.if anyone want to contact me in this regards pls mail me in marinekarthikeyan@gmail.com.bye for now

    ReplyDelete
    Replies
    1. I've sent you a mail please reply to help us

      Delete
    2. Dear karthikeyan,

      how is your mother now. Please update..

      Delete
  25. Hi Karthik, how is your mom health. Is there any improvement?

    ReplyDelete
  26. Please could you say what kind of 'allopathic' (I imagine you mean chemical) treatment they used
    on your mother? Thank you! ladyiehawk@aol.com

    ReplyDelete
  27. Sorry to hear you're all going through this but glad to know I'm not alone.

    Some of the research I've been doing shows a connection between auto-immunes and
    "leaky gut syndrome." Looks very right-on to me.

    Many years ago my herbalist got me over Epstein Barr, which they said is "incurable" - clearly not
    true. But getting another auto-immune shows me I've got an ongoing problem. And I'm pretty sure it
    came from overdoing Sugar - I'm a 'choco-holic' to the core, though never been overweight. Other than
    sugar/chocolate (Bad!), my diet's been very healthy over the years. "Leaky gut" makes sense.

    Just started using high dose Vit C and probiotics (lactobaccillus acidophilus, coconut water/milk, etc),
    My major lesions had almost all gone away through limiting my diet to 'no Thiols no Tanins.' Pretty extreme, but it worked for almost 2 years until I had a major stress event 2 months ago.

    Dr. said I was doing better than patients using prednisone. But, I did lose a lot of weight - its extreme,
    I admit. Then again, we ALL lose weight with this thing!

    (I read about the Dr. who learned that limiting thiols - garlic & onions etc - and tanins - chocolate, coffee, tea, etc - helped her patients greatly. Where she lives they have 3 times the population of patients with PV.)

    As I said, my mouth went ballistic 2 months ago due to major stress. HAD to try small amount of
    prednisone (10mg) which helped very little - but getting Off it triggered another flare - I was so ticked!

    I don't want to be on this merry-go-round w/ prednisone (very Unmerry indeed!) so I started researching causes of Auto-immunes - and that's when I found the research on "leaky gut syndrome" and auto-immunes, and the connection to probiotics and healing the gut.

    Will let you know what happens if you like. Wondering if anyone would be interested in a more
    frequent interaction - maybe there's a way to Group Skype or something? I know that group
    support is a Major Player in the Healing Process.

    Thanks for responding if you do. Will post this on another page here as well.

    Wishing you all Full Recovery and Excellent Health!

    ladyiehawk@aol.com

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  30. Hi, my younger brother suffering PV . And I'm very depressed saw his problem.. we r consult with doctor and waiting for test reports for 7 days that reasons dr. No advice any medicine.. please help what i do.

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  32. Talk to the Doctor Vanessa Holland at the Dermatology Center at UCLA...I've been going there for over 12 years and been treated for PV with Rituxan treatments.

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    Replies
    1. Thanks for your post Carmen. PV is such an interesting disorder as it appears to hit people in slightly different ways and people respond to different treatments. I am curious, were you on any other meds or treatment beside prednisone when it didn't appear to help?

      Delete
    2. Hi Carmen
      Do you have any other Providers in the Los Angeles area to recommend that have experience with this? ie. dentist, gyn, holistic? Thanks!

      Delete
  33. Hello Everyone, I am Dr.Waseem Quereshi from Hyderabad,INDIA.
    I have been treating Psoriasis Arthritis and Pemphigus Vulgaris Successfully in India anyone need any help can contact me at my mobile number
    Ph:+919000222404

    ReplyDelete
    Replies
    1. hello sir , which treatment ayuerveda or allopathy u deal with pemphigus .plz tell me ...

      Delete
  34. Hello Everyone, I am Dr.Waseem Quereshi from Hyderabad,INDIA.
    I have been treating Psoriasis Arthritis and Pemphigus Vulgaris Successfully in India anyone need any help can contact me at my mobile number
    Ph:+919000222404

    ReplyDelete
    Replies
    1. Dr Wassem, I am from Pune. Recently diagnosed with PV.red blisters in mouth spreded all over toungue, cheeks n gums hence unable to eat. Few blisters appeared on trunk, legs n back are healing slowly but mouth is painful. Plz advise

      Delete
  35. My name is ajay singh ,im from south mumbai and pv paitent from 2012 .

    It was started from mouth n cover entire body as its rear disease south mumbai dr has just done experiment on me by giving steriod n other drug which resulted over weight ,tangness of my skin, catered problem.

    Later i have done my treatment from dr ranjan c rwala from ahemdabed and got in remission as was on rituximab n my report has come normal in december 2015 negative

    But suddenly it has re acute again n finding is my line of treatment proper as i want to remove this disease from my body permanent.

    Recently ihave took 1500gm rituximab in mumbai and waiting for results followed by dexta pluse seating one... but still der no response worried....

    Kindly any one can guide me to cure my self for long run as we all know pv is non curable disease we can only control...




    Can ur treatment will cure me



    Waiting for ur blessing treatment

    Regards

    Ajay Singh

    ReplyDelete
  36. My name is ajay singh ,im from south mumbai and pv paitent from 2012 .

    It was started from mouth n cover entire body as its rear disease south mumbai dr has just done experiment on me by giving steriod n other drug which resulted over weight ,tangness of my skin, catered problem.

    Later i have done my treatment from dr ranjan c rwala from ahemdabed and got in remission as was on rituximab n my report has come normal in december 2015 negative

    But suddenly it has re acute again n finding is my line of treatment proper as i want to remove this disease from my body permanent.

    Recently ihave took 1500gm rituximab in mumbai and waiting for results followed by dexta pluse seating one... but still der no response worried....

    Kindly any one can guide me to cure my self for long run as we all know pv is non curable disease we can only control...




    Can ur treatment will cure me



    Waiting for ur blessing treatment

    Regards

    Ajay Singh

    ReplyDelete
  37. Pemphigus is an autoimmune disease being characterized by blisters. Pemphigus Herbal Treatment to support your immune system while reduce blisters happening in Pemphigus vulgaris.

    http://www.herbs-solutions-by-nature.com/Pemphigus.php

    ReplyDelete
  38. Hello,

    Currently I am handicapped by PV. I was diagnosed on Christmas Eve in 2015. I kept it under control with herbs, and a holistic approach. Then in Feb of this year, it completely went from 0-60. The one to two lesions a week became 4-6 a day and are now covering 75% of my body. I am currently on 60mg of Pred, and Ibuprofen for pain. I am bandaged to go to sleep and find comfort in bathing. I have not left the house except for Dr's apps in the last 6 weeks. I am very disheartened and depressed.
    I still believe in the holistic approach so I have not stopped taking my supplements including those for infections and parasites and leaky gut. I just finished my second round of Rituxan a month ago and am still making blisters. I was told it takes time for this medication to kick in.
    I would love any insight or advice on what everyone else is doing to put this into remission. I also am woking on the emotional aspect of it too with hypnotherapy, and other healing modalities.
    Thank you,
    Sakura

    ReplyDelete
  39. please can u contact on dis no 7020082645

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  40. mehetab my uncle is suffering from pv...please can u help me...and contact me if possible 7020082645

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  41. My mom got diagnosed with PV, We are from Kerala, India.She has blisters in her mouth and is under steroid medication. Please suggest a good doctor in Kerala or South India so that we can get her quality treatment.
    Contact: +91 7899218210
    Regards,
    Sreesha

    ReplyDelete
  42. My brother has diagnosed as Pv, please suggest me best doctor in india

    ReplyDelete
  43. My mother having PV from past 2 years having allopathy medicine after stopping of 6 months medicine new blisters are coming up..... many side effects will be there if we use allopathy medicine.....now am looking for Ayurvedic Medicine.... please can anyone suggest Ayurvedic Treatment or medicine or hospital that will help my mother..... will create WhatsApp group for PV.... please message me on WhatsApp 08951735945

    ReplyDelete
  44. please explore ayurvedic treatment.. I am readin that a lot of people have found cure through nutrition and lifestyle changes and ayurveda

    ReplyDelete
  45. Hi I’ve recently been diagnosed and am trying not to freak out as I know that makes it worse.
    I too saw Dr. Vanessa Holland and love her! I am considering bypassing months of Prednisone and going straight to Rituxan, if possible. I’m also treating leaky gut and avoiding all the foods which contain the chemical compound triggers. Any suggestions for natropaths or holistic doctors in the area with experience in PV? I’m getting Accupuncture and herbs not too may people have experience in this particular autoimmune disorder. I’d also like to join a chat group too. Thanks, M

    ReplyDelete
  46. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5726192/
    One Patient was completely cured by this ayurvedic treament.
    Please go through this website for ayurvedic treatment of Pemphigus Vulgaris.
    I am presently going through this ayurvedic tretment since last four daysdays.Results will be known in a months time or so .

    ReplyDelete
  47. Hello,

    I am Vishal from Ahmedabad. So many people nowadays infected with this disease and one of them I am too. Let me share my experience, I found it in 2015, after 3 months of treatment in homeopathic, doctor suggest me to go CIVIL Hospital, in Ahmedabad, so when I took treatment, luckily they found it in very early stage and my treatment going on. Nowadays I am only taking 5mg of drug(Omnicortin,approx.5rs per 10 tablets), and I feel very good and living normal life. Also for blisters on lips you can try MOTIMESH-SF(about 140rs) tube, really this two medicines are very effective for me.

    ReplyDelete
    Replies
    1. @vishal, Are you talking still treatment at Ahmadabad civil hospital?, Can you please explain in brief which medicine you are taking now?, that may be helpful to others, my wife is taking 10mg and 5mg alternate days so, Can you provide your email address? or you can provide information regarding it at my email vipulp833@gmx.com

      Delete
  48. Hello All,
    I am 28 year old female with PV. I was on high dose of steroids but had to stop suddenly as the high dose gave me a side effect of AVN-hip (damaged hip bone). But Rituximab inj is really working for me. I got a relapse after a year and again took 1 cycle of rituximab and the lesions were gone 90%.
    So guys if possible really try rituximab , as I have tried homeopathy ayurvedic everthing. Nothing seems to be working more than Rituximab.
    Thanks!

    ReplyDelete
  49. Hello,

    @Vishal, we are also taking treatment at Ahmedabad Civil hospital for my wife, she is feel very good and living normal life today, we are taking below medicines from last 8 months

    1. 5mg Omnacortil (1 tables in a day at early morning with milk)
    2. Azoran (2 tables in day, morning and evenving)
    3. Gemfos (1 tables in a week)

    If have any other good treatment for this then suggest to us

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  50. Has anyone had zero spem count after taking steroids.

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  51. My mother has been suffering from PV since one year. Steroids didn't help. Now going for rituximab. Please pray for her. I am praying for all good people over here. Thanks

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  52. Hi am suffering from PV from past 5years.. Plz suggest me a good doctor with best medicine.. My mail I'd is santhuengineer053@gmail.com..

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  53. Can u please tell me from where u took treatment. My mother is suffering heavily last 1.5 years. Kindly give the contact details. My email ID is vasavasunil24@gmail.com.plz

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  54. Hi All,
    My mother is also suffering from PV . Can you suggest me good place/doctor for the treatment. Currently I am in Bnaglaore and my family is in Assam. She is going on DCP therapy but can't see improvements.
    Please help me out.
    My mail id is vpcotton09@gmail.com

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